Racial and ethnic disparities: What can we learn from RWE?
In this episode, we examine racial and ethnic disparities through the lens of oncology, real-world data and health policy. Our guests include members of Flatiron’s Race and Ethnicity Data (RED) team: Kathleen Maignan, NP, Senior Clinical Director, Lura Long, Senior Manager, Partner Solutions and Kelly Magee, NP, Senior Clinical Director.
Publications mentioned in this episode:
- Maignan K, Backenroth D, McQuarrie NA, Lipitz NG, Williams ER, Carson KR. Real-world disparities in daratumumab utilization for patients with relapsed or refractory multiple myeloma (MM). Poster presented at 2018 Annual Meeting of the American Society of Hematology (ASH); San Diego, CA.
- Adamson BJS, Cohen AB, Estévez M, Magee K, Williams ER, Gross CP, Meropol NJ, Davidoff AJ. Affordable Care Act (ACA) Medicaid expansion impact on racial disparities in time to cancer treatment. Oral presentation at 2019 Annual Meeting of the American Society of Clinical Oncology (ASCO); Chicago, IL
Kathleen Maignan, AGPCNP-BC, MSN, OCN joined Flatiron in February 2017, bringing an extensive background centered in hematology-oncology nursing and clinical research. As a Senior Clinical Director on the Research Clinicians team, Kathleen uses her expertise to help answer important research questions using the data available from our Flatiron network. Kathleen also continues to practice as a Nurse Practitioner focused on Bone Marrow and Stem Cell transplantation.
Lura Long leads the Partner Solutions team at Flatiron Health, managing efforts to equip data scientists with information and tools to effectively use Flatiron real-world data. In prior roles at Flatiron, Lura contributed to functionality within OncoEMR ® to increase patient access to patient assistance programs and managed early efforts to identify patients for clinical trials using electronic health record information.
Lura came to Flatiron by way of the Michael J. Fox Foundation where she managed digital recruitment and website development for patient reported outcomes studies, trial matching and patient engagement programs. She’s driven to close inequities in healthcare outcomes via software and evidence based research.
Kelly Magee, FNP-BC, MS is a nurse practitioner who serves as Senior Clinical Director on the Research Clinicians team at Flatiron Health. In this role, Kelly focuses on the development of novel approaches for using electronic health record data to understand the experiences of people with cancer.
Prior to joining Flatiron Health, Kelly was Nurse Practitioner Clinical Program Director at Memorial Sloan Kettering Cancer Center, leading nurse practitioners across the institution and maintaining a clinical practice caring for critically ill medical and surgical inpatients in the Advanced Care Unit. Prior to that she worked as a Staff Nurse at Maimonides Medical Center in Brooklyn, NY.
Alex Gorstan is a marketing director at Flatiron Health and the host of this episode of The Real World, In Practice podcast. He partners with experts across the organization to drive the measured and meaningful application of real-world evidence in oncology. Before joining Flatiron, Alex worked in Product Management and Software Engineering at companies including Opower, Johns Hopkins Medical Institute and CareFirst Bluecross Blueshield
Special thanks to Tanya Elshahawi, Lesley Plotkin, Dan Reyes and Chad Michael Snavely for their work on this episode.